Lucy's NICU Journey: Trying to be Patient

It has been quite a while since I have updated the blog. Mostly because there is nothing new going on. We have just been in this holding pattern waiting on Lucy to eat. If it weren't for that we would have been home 2 weeks ago.

She is doing great, gaining weight and being a good girl...other than not taking her bottles. She now weighs 6 pounds. The exact same weight that her brother was at this age (10 weeks old). Of course she has gained more quickly since she was smaller than him at birth. Her little chin and thighs are getting chubby unlike him.

She was starting to do really well with her bottles over the weekend. So much so, that I was convinced we'd be home by now. On Monday, she decided that bottles weren't her thing and she'd rather sleep and be tube fed. It was very discouraging. She did horrible on Monday and Tuesday with her feeds, not completing any of them. One of the nurses suggested she may not like frozen breast milk (super discouraging considering I have 200+ bottles of it in the freezer) and to try fresh. Since then she has woken up and at least tried every bottle, completing most and almost completing the rest. I am REALLY hoping that she just had that light-bulb moment and realized she likes to eat and it has nothing to do with frozen vs. fresh milk.

Anyway, that is where we stand now. she was moved to a private room today because the NICU is full and they needed the big open space for new babies coming in. I think she prefers the quiet though! :)

Prayer requests:
-Eat, Eat, Eat!!! That she will complete all of her bottles for 48 hours...that is our ticket home!
- All of her follow-up appointments to be okay---eyes, dermatologist for her hemangioma on finger, pediatrician, etc.
- Last brain scan to be clear
- Safe trip home when that happens...fingers crossed it is soon
- My sanity. I knew this was the part where we needed patience...mine is wearing very thin. I can only be away from my baby like this for so long and I have reached that point where feel like I just CAN'T do it much longer.

Pictures...I have taken TONS since my last update, so it was hard to narrow down. Sorry so many :)