Friday, April 12, 2013

Day 8 and 9

Day 8- Super uneventful!  This is a great thing.  No scans or tests or anything to mess with Lucy.  She was able to rest peacefully all day long.  Switching back to the bubble cpap seems to be the key for the moment. She went from having 6-8 bradycardias an hour at times to 6-8 in a 24 hour period yesterday (all of them self-recovered quickly which is also good).  Because she did so great I was able to hold her for over an hour yesterday.  Neither of us wanted it to end, but I had a big 4 year old brother to entertain.  :)  I have been missing him so much.  In the last few weeks we have hardly seen each other with everything going on.  He stayed in the hotel with Brady and I, and of course to him, that was the best thing EVER!

-EKG came back fine today

It was one of those one step forward kind of days.  Pray for many more of those!  Knowing how NICU life is, I know it won't be like this everyday for the duration, but it really feels good to have those days when you feel like everything is going to be just fine!
Lucy's first bath...she was not a huge fan!  ha.
Being modest...holding her towel.  :)
 Holding her while they changed her bed.  She's tiny but soooo sweet!  
 Kangaroo cuddle time with Mommy
Mason playing in the hotel
Asleep with all of his friends piled on him!  :)

Day 9-Another uneventful day of rest and growing.  As of 6:00PM Lucy had only had 2 bradycardia "episodes" in a 24 hour period.  That's kind of a big deal.  Who knows what tomorrow brings, but little Lucy has been doing great the last couple of days.  Really there has been nothing to report when I call in to check on her. She is back up to her birth weight as of last night...2lbs. 3oz.  Hopefully tonight we will get over that hurdle and will really start to watch her grow.  I already think that she looks bigger than the day she was born.  It may sound silly since she is so tiny, but her face looks fuller to me and her arms and legs look a little less scrawny.  :)
Today we spent the day with Mason and took him to his favorite, Chick-fil-a for lunch.  Then we went to get him a desperately needed haircut and to the Safari park to play.  We came home today and left Lucy in Lewsiville...that has been pretty tough on me.  But it has been nice to have a meal at our dinner table, a nap in my own bed, hearing Mason laugh and play with his cousins outside and sitting here on my own couch wrapped in a blanket while I type.  Time to find a new routine and a new "normal" for the next couple of months.  It makes me tired to think about it, but "I can do all things through Christ who gives me strength!"
 Haircut time for big brother
 Safari park fun
Prayer Requests:
-More uneventful days...days of growing and sleeping for Lucy
-Mondays heart echo to be clear of PDA---hole in heart.  We already know it is tiny and no murmur is heard, but we want it GONE.
- Wednesday's brain scan...bleed to be gone.  We know it is a grade 1 bleed (lowest risk), but again we want it GONE.
-For no infections
-That she keeps tolerating her feeds so well.  She has done awesome so far.
-For all the other little punkins and parents in NICU...it's a tough road for everyone involved.


3 comments:

  1. YEAH FOR LUCY!! I can only imagine how you feel to leave you baby girl, but she is in good hands! Prayers are continued! I love to see the pictures.

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  2. she is precious. checking in often and praying for Lucy's health and you guys as you make all of these transitions.

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  3. Sending you all lots of prayers!!

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