Lucy's NICU Journey: Weekend Update

Update:
Lucy continues to do well. She mostly just sleeps and eats, which is a good thing! She has been put in "time out" by her nurses a few times lately. :) She has officially mastered the skill of pulling out her feeding tube a few times a day. Mason used to do that all of the time too, so she takes after big brother. There is not a lot to report from the weekend. She did lose a little bit of weight...probably due to being taken off of the extra fats through her PICC, but also she is now weighed differently (on a scale versus her fancy bed). There could be a difference in the scales since they don't use the same one every time. Plus, they weighed her without her gear on last night. Hopefully she will start gaining quickly again.
She will be "32 weeks" on Wednesday so they will start trying to put the nasal canula on her to see how she does, versus the cpap. Hopefully it won't take her too long to be switched over. Once she does pretty well on that we can take her to the window for Mason to see her for the first time. :)
Most of our weekend was spent entertaining Mason. He had music class and two birthday parties to attend, so we were busy with that. It all kind of runs together these days.

If you are Interested:
-Since Mason was born due to my Preeclampsia, we have been involved in the local DFW Preeclampsia foundation. We walk every May in the DFW Promise Walk and raise money to go toward research for Preeclampsia and hopefully a cure one day. With Lucy I developed HELLP syndrome shortly after I had her (probably started developing the day I had her). HELLP is a life threatening variant of preeclampsia if not found and treated quickly. All this to say, we will be walking on May 18th in honor of Mason and Lucy who were both born too early due to my Preeclampsia/HELLP syndrome. If you are interested, you can donate to our walk or even join our team. You can go to the DFW page to donate or join the team, Team Mason (Lucy was not here yet when we registered!)
http://www.blueskycollaborative.com/pfpw/fundevent.asp?nnaffundid=16

-Several have asked about bringing meals to us. One of my sweet friends set up a calendar on a website called Mealtrain. If you are interested, I am going to direct you there. Please do not feel obligated to do this!! I am just passing on the information for those who have asked. :) Here is the link for that..
http://www.mealtrain.com/view/?id=%2boIMGalRt50%3d

Prayer Requests:
-That Lucy would start gaining weight again
- For the next brain scan to be clear or at least smaller bleed
- For the remaining test results for PKU to be in the normal range. The one we got back already was slightly elevated still (down from a lot elevated)...we want it even lower!
- That she will do well when they start doing the trial to take her off of her cpap and put her on a nasal canula
-For the other babies/families in the NICU. A new baby was brought in yesterday that was not doing well at all. Pray for him and his family.
-For the amazing doctors and nurses who care so much about these sweet babies. The only reason I can sleep at night is because of these amazing people!

Thank you so very much for your prayers! We can definitely feel them each and every day.

Photos:

Mommy, Daddy and Lucy